Columns

Because of Duchenne, I’m Working Smarter, not Harder

Millions of people around the country have quit their jobs in search of more fulfilling work, better hours, and work-from-home options in what the media is calling the “Great Resignation.” Some of them, I’m sure, are realizing that they don’t need to work a full 40 hours to accomplish…

Learning When to Say Yes and When to Say No

Learning when to say yes and when to say no has been especially important for me as I live with Duchenne muscular dystrophy (DMD). It’s a balance between trying to rise up in my career by accepting story assignments, and saying no to events, friends, and more assignments so that…

Why I Don’t View Myself as Disabled

We form our identity from the world around us. That includes factors like our relationships with parents, siblings, and friends, what we look like, our sexual orientation, and our religious beliefs, among others. For me, one unspoken taboo is my disability. I use a wheelchair because I can barely walk,…

It’s Never Just a Cold

I have shared many times in this column that I have three sons with Duchenne muscular dystrophy. People sometimes think I’m an expert on the subject. But the truth is that my boys are unique, and Duchenne has affected each of them differently. Their disease progression and weakening muscles…